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'I’ve known that something was wrong for a long time' | Tallulah Willis writes about father Bruce Willis' dementia

Tallulah said she refused to face the truth of Bruce's faltering mental faculty for a long time because she was wrestling with her own demons.

WASHINGTON — In an essay written for Vogue, actress Tallulah Willis — one of the daughters of Bruce Willis — opened up about family tragedy, her own struggles with mental health and how she is reckoning with her father's dementia diagnosis. 

In the piece, a raw and vulnerable self-reflection, the 29-year-old Tallulah said she knew something was wrong with her dad long before the family revealed his diagnosis in 2022

"I’ve known that something was wrong for a long time," she wrote. "It started out with a kind of vague unresponsiveness, which the family chalked up to Hollywood hearing loss: 'Speak up! Die Hard messed with Dad’s ears.' Later that unresponsiveness broadened, and I sometimes took it personally. He had had two babies with my stepmother, Emma Heming Willis, and I thought he’d lost interest in me. Though this couldn’t have been further from the truth, my adolescent brain tortured itself with some faulty math: I’m not beautiful enough for my mother, I’m not interesting enough for my father." 

But eventually, the reason for Bruce's withdrawal became clear. He had aphasia, the inability to speak or understand speech correctly. It's a prominent symptom of frontotemporal dementia, which Bruce Willis was diagnosed with earlier this year, according to the acclaimed actor's family. It's a neurological disorder that eats away at the brain's ability to remember and causes personality shifts. 

Tallulah said she refused to face the truth of her father's faltering mental faculty for a long time because she was wrestling with her own demons: Depression, anorexia and ADHD.

"I admit that I have met Bruce’s decline in recent years with a share of avoidance and denial that I’m not proud of," she wrote. "The truth is that I was too sick myself to handle it."

She said a turning point came when she attended a wedding and realized her father wouldn't be involved with her own.

"I was at a wedding in the summer of 2021 on Martha’s Vineyard, and the bride’s father made a moving speech," Tallulah recalled. "Suddenly I realized that I would never get that moment, my dad speaking about me in adulthood at my wedding. It was devastating. I left the dinner table, stepped outside, and wept in the bushes." 

Credit: Richard Shotwell/Invision/AP
Tallulah Willis attends 2019 AFI Fest - "Hala" at the TCL Chinese Theatre on Monday, Nov. 18, 2019, in Los Angeles.

In 2022, Bruce's family announced he was stepping away from his decades-long acting career after being diagnosed with aphasia. In March 2023, his family shared that his condition had progressed, and revealed he had been diagnosed with frontotemporal dementia. Also known as FTD, the condition is the cause of approximately 10% to 20% of dementia cases, according to Mayo Clinic.

Now 68, Bruce remains largely out of the spotlight.

Tallulah wrote in her essay that he largely stays inside at his home. 

"These days, my dad can be reliably found on the first floor of the house, somewhere in the big open plan of the kitchen-dining-living room, or in his office," she wrote. "Thankfully, dementia has not affected his mobility." 

Credit: Charles Sykes/Invision/AP
FILE - In this Friday, Oct. 11, 2019, file photo, Bruce Willis attends the "Motherless Brooklyn" premiere during the 57th New York Film Festival at Alice Tully Hall, in New York.

Bruce's wife, model Emma Heming Willis, shared an emotional video earlier in the year asking paparazzi not to yell at her husband and to give him space when they see him in public. 

"In the spirit of raising awareness around dementia, it's clear that there's still a lot of education that needs to be put forth," Emma said in her video, which she posted to Instagram. "This one is going out to the photographers and the video people that are trying to get those exclusives of my husband out and about: Just keep your space."

She posted the video after paparazzi photographers approached Bruce while he was on a rare outing, getting coffee with friends. 

Emma said his friends did a "stand-up job" of protecting the actor.  

"For the video people, please don’t be yelling at my husband asking him how he’s doing or whatever," she added. "The ‘woohoo’-ing and the ‘yippee ki-yays’… just don’t do it. OK? Allow for our family or whoever’s with him that day to be able to get him from point A to point B safely."

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